PROJECTS & EVENTS UPDATE: ERN-PAEDCAN Partner: Paediatric Rare Tumours Network – European Registry27/06/2018
The PARTNER Project is part of the European Reference Network for Paediatric Cancer (ERN PaedCan). It is a 3-year project that involves 6 research centres as Associated partners.
PROJECTS & EVENTS UPDATE: IMI2’s conect4children launch27/06/2018
Conect4children: a new public-private partnership to improve the development of new drugs for children in Europe.
POLICY-RELATED UPDATES: Digital Transformation of Health and Care in the Digital Single Market15/06/2018
SIOPE’s input to the consultation highlighted the need to balance data privacy and cross-border data exchange, essential to enable research on childhood cancers.
POLICY-RELATED UPDATES: European Parliament supports childhood cancer policies and funding15/06/2018
The European People’s Party (EPP) called for a substantial increase in funding (“multiplied tenfold by 2024”).
POLICY-RELATED UPDATES: Paediatric Medicines Regulation updates15/06/2018
SIOPE emphasised the Paediatric Strategy Forums jointly implemented by ACCELERATE and EMA as a model to share information and advance learning in a pre-competitive setting.
POLICY-RELATED UPDATES: Joint Action on Rare Cancers (JARC)15/06/2018
Launch of a targeted survey on availability, accessibility and costs of essential medicines.
COLLABORATING WITH PARTNERS: SIOPE – ESOP Symposium Session15/06/2018
This SIOPE – ESOP joint session (Dose Banding) will be held at the 4th edition of the European Conference of Oncology Pharmacy (ECOP4), 25-27 October 2018, Nantes, France.
COLLABORATING WITH PARTNERS: ESMO–SIOPE Adolescents and Young Adults (AYA) Working Group15/06/2018
The ESMO-SIOP Europe Adolescents and Young Adults Working Group was formed in 2016 and is a collaboration between ESMO and SIOP Europe.
COLLABORATING WITH PARTNERS: ESGO-SIOPE Guidelines for the Management of Gynaecological Cancers in A15/06/2018
In order to address the specific needs of teenagers and young adults, SIOP Europe is collaborating with the European Society of Gynaecological Oncology (ESGO) on the creation of guidelines for the man
PROJECTS & EVENTS UPDATE: QUARTET: Excellence in Radiotherapy for Children and Adolescents:15/06/2018
The protocol for the HR-NBL-2 (High Risk Neuroblastoma) has been approved by the SIOPEN Group and will now be submitted to the ethics committee. Up to 1000 patients can be expected to enrol in the nex