Improving the care of children in Europe with rare cancer03/09/2018
SIOP Europe together with Coordinators for the PARTNER Project and ERN PaedCan highlight the importance of collaboration in order to improve the care of children in Europe with rare cancer.
‘The ‘Survivorship Passport’ for childhood cancer survivors’ is published in the European Journal of21/08/2018
The Survivorship Passport (SurPass) is a tool aiming to provide all European childhood cancer survivors with optimal long-term care.
SIOP Europe Young Oncologists: Call for Membership12/07/2018
A new working group has been formed: Young SIOPE Group.
Events and projects updates: SIOP Europe 2019 Annual Meeting; SIOPE – MAC Event ‘Celebrating 20 Years of Progress in the Paediatric Haemato-Oncology in Europe’; SIOP Europe Gold Ribbon Awards, etc.
Collaborating with partners: CCI Europe27/06/2018
Pleased to announce that the SIOP Europe 2019 Annual Meeting will be held in partnership with CCI Europe. All tumour group members, SIOP Europe and SIOP members are invited.
PROJECTS & EVENTS UPDATE: ERN-PAEDCAN Partner: Paediatric Rare Tumours Network – European Registry27/06/2018
The PARTNER Project is part of the European Reference Network for Paediatric Cancer (ERN PaedCan). It is a 3-year project that involves 6 research centres as Associated partners.
PROJECTS & EVENTS UPDATE: IMI2’s conect4children launch27/06/2018
Conect4children: a new public-private partnership to improve the development of new drugs for children in Europe.
POLICY-RELATED UPDATES: Digital Transformation of Health and Care in the Digital Single Market15/06/2018
SIOPE’s input to the consultation highlighted the need to balance data privacy and cross-border data exchange, essential to enable research on childhood cancers.
POLICY-RELATED UPDATES: European Parliament supports childhood cancer policies and funding15/06/2018
The European People’s Party (EPP) called for a substantial increase in funding (“multiplied tenfold by 2024”).
POLICY-RELATED UPDATES: Paediatric Medicines Regulation updates15/06/2018
SIOPE emphasised the Paediatric Strategy Forums jointly implemented by ACCELERATE and EMA as a model to share information and advance learning in a pre-competitive setting.