Pediatric Palliative Care (PPC) aims to support children and families from the time of diagnosis of a life-threatening or life-limiting illness, whatever the outcome may be, not only in a terminal or end-of-life phase.
The early integration of Oncology and Palliative Care has been recognized as having benefits for patients, families, and teams. It enables user centered care, where concerns about quality of life, preferences and values are given the same relevance as cutting-edge therapy.
The SIOP Europe Pediatric Palliative Care Working Group was launched on the occasion of the 3rd SIOP Europe Annual Meeting in March 2022. The Working Group aims to improve the quality of life of children with cancer in Europe, by fostering the early integration of Oncology and Palliative Care through increased awareness and educational opportunities, as well as service development and networking.
The SIOP Europe Pediatric Palliative Care Working Group aims to:
- Increase awareness about PPC in Pediatric Oncology among all stakeholders.
- Create and dynamize educational opportunities about PPC in Pediatric Oncology.
- Promote the best possible quality of care for children with cancer in all settings.
- Support PPC related research in Pediatric Oncology.
- Foster communication and collaboration among PPC providers in Pediatric Oncology across Europe.
Current Steering Committee Members:
- Ana Lacerda , Portuguese Institute of Oncology, Lisbon, Portugal; senior oncologist; chair
- Alice van Velzen , Princess Maxima Center, Utrecht, the Netherlands; ySIOPE representative
- Deborah Gubler, Institution, Zürich, Switzerland; EAPC representative
- Georgia Kokkinou , Floga Parents Association of Children with Cancer, Greece; CCI Europe representative
- Eva Tinner, Consultant in Paediatric Palliative Care, Kinderspital Zürich, Zürich, Switzerland; Pan Care representative
- Kerstin Krottendorfer , Medical University, Vienna, Austria; Clinical Social Worker; SIOP Europe Psychosocial Group representative
- María Avilés , Hospital Nino Jesus, Madrid, Spain; SIOP Europe Nursing Group representative
- Verena Rosenmayr, General Hospital and the Medical University of Vienna, Vienna, Austria; Clinical Psychologist; SIOP Europe Psychosocial Group representative
Resources:
Interested in joining the Working Group:
If you are involved in the holistic care of children with cancer and their families, either as a healthcare professional, researcher, family or volunteer, we invite you to apply for membership to the SIOP Europe Pediatric Palliative Care Working Group.
Please complete the application form. You will be asked to provide your contact details, upload a short CV and describe your interest in joining the Working Group.
The applications will be evaluated by the Steering Committee.
For further information, please contact Chiara Michi: chiara.michi@siope.eu