Overcoming cancer is possible today, but many European childhood cancer survivors still suffer from considerable treatment-related side-effects throughout their lives. Improving their long-term health was the aim of the European Conference PanCareSurFup for Childhood Cancer Survivors ‘Acting Now!’, which took place on 23-24 May 2016 in Brussels, Belgium. SIOPE (the European Society for Paediatric Oncology) and the conference co-organisers are delighted to cooperate with Mr. Alojz Peterle MEP (SL, EPP) and President of the MEPs Against Cancer (MAC) Group, who opened this important event, held in association with the European Week Against Cancer (25-31 May).
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Monday 23 May 2016 - Session 1
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- Opening address - Alojz Peterle, MEP (EPP, SL) and President of the MEPs Against Cancer (MAC) Group
- Introduction to PanCareSurFup - Lars Hjorth (PanCareSurFup, Lund University, SE)
- Survivors’ experiences (panel discussion): Victoria Forster (Northern Institute for Cancer Research, UK),Tom Grew (UK),Holly Wattwil (Childhood Cancer International, SE)
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Monday 23 May 2016 - Session 2
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- Keynote lecture 'Success story: Increased survival after childhood cancer: a coin with two sides' - Stanislaw Garwicz (PanCareSurFup, Lund University, SE)
- Highlights and progress of PanCareSurFup - Lars Hjorth (PanCareSurFup, Lund University, SE)
- Where did the data for PanCareSurFup come from? - Desiree Grabow (PanCareSurFup, German Childhood Cancer Registry, DE)
- The role of dosimetry in risk assessment - Florent de Vathaire (PanCareSurFup, Institut Gustave Roussy, FR)
- Damage to the heart from cancer treatment - Leontien Kremer (PanCareSurFup, Emma Children’s Hospital, AMC, Cochrane Childhood Cancer Group, NL)
- Causes and prevention of further cancers - Mike Hawkins (PanCareSurFup, University of Birmingham, UK)
- Survivors breaking barriers (panel discussion): Julianne Byrne (PanCareSurFup, Boyne Research Institute, IE), Jaap den Hartogh (VOKK, NL), Eleonora Guzzi (IT), Daniel Tomai (RO)
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Tuesday 24 May 2016 - Session 3
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- Survivor’s story - Sarah Quigley (IE)
- Creating guidelines for long term follow-up - Rod Skinner (PanCareSurFup, Great North Children’s Hospital, UK)
- The Survivorship Passport: achievements and future developments - Riccardo Haupt (PanCareSurFup, Institute G. Gaslini, IT)
- Delivering long-term care - Heleen van der Pal (PanCareSurFup, Outpatient Clinic for the Late Effects of Treatment for Childhood Cancer, AMC, NL)
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Tuesday 24 May 2016 - Session 4
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- Equal access to care, research projects and training for care and research / Other current EU initiatives / How long-term follow up can be integrated into new clinical trials - Martin Schrappe (SIOPE, University Medical Centre Schleswig-Holstein, DE)
- Potential future directions for ‘outcomes’ research relating to survivors - Mike Hawkins (PanCareSurFup, University of Birmingham, UK)
- What would clinicians (doctors/nurses) like from future research? - Monica Terenziani (Foundation IRCCS Istituto Nazionale dei Tumori, IT)
- Message from European Commission Scientific Officer responsible for PanCareSurFup - Dominika Trzaska (DG Research & Innovation, European Commission, BE)
- Ethical aspects associated with survivorship research and care - Meriel Jenney (Children’s Hospital for Wales, UK)
- Implementation of long-term follow-up guidelines & the Survivorship Passport - Rod Skinner (PanCareSurFup, Great North Children’s Hospital, UK) & Riccardo Haupt (PanCareSurFup, Institute G. Gaslini, IT)
- Sustainability of guidelines and international collaborations - Leontien Kremer (PanCareSurFup, Emma Children’s Hospital, AMC, Cochrane Childhood Cancer Group, NL)
- Summary & Take Home Messages - Lars Hjorth (PanCareSurFup, Lund University, SE)