Publications

Manneken-Pis as childhood cancer expert

Manneken Pis dresses up as a doctor to raise awareness about childhood cancer

Childhood cancer experts urge inclusion of UK and Swiss researchers in EU projects

Science Business

The Paediatric Rare Tumours Network ‐ European Registry (PARTNER) Consortium Project

Pediatric Blood and Cancer

Shining a light on Childhood Cancer Awareness Month

The Innovation Platform

The European Parliament in Brussels lit up in gold in support of Childhood Cancer Awareness Month!

Cancer World

Data protection and research in the European Union: a major step forward, with a step back

Annals of Oncology , P.G. Casali and M. Vyas on behalf of the European Society for Medical Oncology (ESMO)

Childhood cancer: An urgent European problem

The Parliament Magazine

European Elections 2019: Beating childhood cancer

Open Access Government

A Manifesto to put childhood cancers high in the European agenda

CancerWorld

Beating Childhood Cancer: Minimising deaths and late effects

Health Europa

Paediatric oncology: Equal access to childhood cancer medicines

SciTech Europa

Collaboration is key to improving the care of children with rare cancers

The Parliament Magazine

Caring for children in Europe with very rare tumours

SciTech Europa

4 ways cancer is changing how we test medicines

POLITICO

ERN PaedCan facilitates effective cross-border healthcare

Government Gazette

Improving the care of children in Europe with rare cancer

Open Access Government

Collaboration is key in tackling childhood cancer

The Parliament Magazine

The role of collaboration in tackling paediatric cancer

Open Access Government

Childhood Cancer: Benefiting from the best knowledge available in Europe

The Parliament Magazine

The provision of effective cross-border healthcare

Open Access Government

SIOP Europe’s List of Essential Medicines for Children and Adolescents with Cancer in Europe Published in The Lancet Oncology

Lancet Oncology

SIOPE/CCI-E News Release: Great initiatives require a flawless implementation: coordination is key and an EU Childhood Cancer Advisory Board is the answer

A Europe for Children & Adolescents with Cancer: Position paper of the European paediatric cancer community

SIOPE News Release: Childhood cancer is under the spotlight in Europe's Beating Cancer Plan

News Release: On International Childhood Cancer Day, health data sharing takes centre stage

WHO Europe Report on Childhood Cancer Inequalities in Europe (NB: including External review and comments provided by SIOP Europe)

WHO Essential Medicines List for Children 2021 includes new Paediatric Cancer Indications and Medicines

Recommendations following the European Commission’s Evaluation of the Legislation for Medicines for Rare Diseases and Children and the launch of the Pharmaceutical Strategy for Europe

European Parliament Health Committee (ENVI) Report: “Strengthening Europe in the fight against cancer: Going Further, Faster”

Ten Recommendations from the EU Joint Action on Rare Cancers

Study Identifies Factors that Limit Work Ability of Young Adult Cancer Survivors : ESMO 2017 Press Release

A cross-border healthcare network to cure childhood cancers

R. Ladenstein - European Parliament Magazine

Cancer treatments 'not being trialled in children'

BBC Health

Seize chance to close EU loophole in childhood cancer treatments, say cancer experts

eCancer

Developing new drugs for children and adolescents with cancer

G. Vassal - CancerWorld , nr. 77

Soft tissue sarcomas in adolescents and young adults : a comparison with their paediatric and adult counterparts

W. T. A. van der Graaf, D. Orbach, I. R. Judson, A. Ferrari - The Lancet Oncology , Volume 18, Issue 3, e166 - e175

Rare cancers : A headache for policymakers

Euractiv.com

Innovative oncology drug development : Why not children?

Adjacent Government , pp. 26

Giving Children a Chance

B.inspired Brussels Airline Magazine

Kinder profitieren von mehr Forschung German article about the EU Paediatric Medicines Regulation

Deutsches Ärzteblatt

ECCO Essential Requirements for Quality Cancer Care : Soft Tissue Sarcoma in Adults and Bone Sarcoma. A critical review.

Critical Reviews in Oncology/Hematology , Volume 110, Pages 94-105

Delivering harmonised paediatric oncology training

R. Riccardi - Government Gazette

Innovative treatments and quality radiotherapy are essential

G. Vassal - Government Gazette

Help us make a difference

Government Gazette

A Paediatric Oncology Reference Network in Europe

Government Gazette

Why more needs to be done to help children with cancer

M. Schrappe - Government Gazette

Making paediatric precision oncology a reality

The Lancet Oncology

A Brighter Future - The European Cancer Plan for Children and Adolescents

European Parliament Magazine , Issue 440

Improving the long-term health of childhood cancer survivors

Adjacent Government

Voice of the Children - For the last five years SIOPE has been partnering with MEPs to raise awareness of child cancer

B.inspired Brussels Airline Magazine

Fighting for the Future - The European Society for Paediatric Oncology (SIOPE) is working to improve the quality of life for children and adolescents with cancer

B.inspired Brussels Airline Magazine

The SIOPE strategic plan : A European cancer plan for children and adolescents

G. Vassal, M. Schrappe, R. Ladenstein et al. - Journal of Cancer Policy , Volume 8, pp 17-32

SIOPE and ExPO-r-Net Project welcome forthcoming General Data Protection Regulation stance on health data

R. Ladenstein, G. Schreier - European Parliament Magazine

Excellence in Radiotherapy for Children and Adolescents : the QUARTET Project

European Parliament Magazine

European Survey on Standards of Care in paediatric oncology centres

J. R. Kowalczyk, M. Samardakiewicz, K. Pritchard-Jones, R. Ladenstein, S. Essiaf, E. Fitzgerald, G. Petrarulo, G. Vassal - EJC , Volume 61, pp 11-19

EU struggles to meet ambitions for rare disease research

P. O' Donnell - Politico magazine

Tackling cancer in children and adolescents

G. Vassal - Adjacent Government

Rerouted, not derailed : resuming a young life after cancer

CancerWorld , pages 48-53

Survivorship Passport : a safe-conduct towards optimisation of long-term care

R. Haupt - EONS Magazine , pp. 14

A close collaboration

S. Essiaf - EONS Magazine , pp. 3

The bright side of surviving cancer

Neira Kameric - EONS Magazine , pp. 15-17

A multi-professional partnership to improve childhood cancer care

G. Petrarulo - EONS Magazine , pp 10-13

From bedside-to-bench-to-bedside : A journey from paediatric oncology nursing into basic research

S. Colomer-Lahiguera - EONS Magazine , pp. 18-20

ENCCA cares Pan-European Networks

Horizon 2020 , pages 168-169

Trialling the future in paediatrics Pan-European Networks

M. Schrappe - Horizon 2020 , pages 164-165

Challenges for Children and Adolescents With Cancer in Europe : The SIOP-Europe Agenda

Pediatric Blood and Cancer

Clinical Research in 2013: Burning issues - Abstracts of the ENCCA Symposium in Vienna 6th of June 2013 at the SFU

M. Gantschacher - Health Law and Science , Sigmund Freud Private University Vienna

Harmonising follow-up on cancer patients - Childhood cancer survivorship: a passport for life

R. Haupt and ICCCPO - OncoPost , OncoPeople, nr. 2

A revolution in progress : Improving Outcomes for Teenagers and Young Adults (TYA) with Cancer

D. Stark, S. Morgan - OncoPost , OncoPeople, nr. 1

Active participation in Long Term Follow Up : Empowering Survivors of Childhood and Adolescent Cancer

D. Hargrave and R. Hough - OncoPost , OncoPeople, nr. 2

The EU Clinical Trials Regulation : Improving clinical research for children and adolescents in Europe?

R. Ladenstein, P.Kearns - OncoPost , OncoPeople, nr. 3

Access to up-to-date best practice : Improving standards of care for children and adolescents with cancer across Europe

J. Kowalczyk - OncoPost , OncoPeople, nr. 3

SIOPE: creating a brighter future

G. Vassal - OncoPost , OncoPeople, nr. 1

A major need to increase access to innovative drugs for children and adolescents with cancer

G. Vassal - OncoPost , OncoPeople, nr. 2

New drugs for children and adolescents with cancer : the need for novel development pathways

G. Vassal, C M. Zwaan, D. Ashley, M. C. Le Deley, D. Hargrave, P. Blanc, P. C Adamson - Lancet Oncology

New policies to address the global burden of childhood cancers

R. Sullivan et al. - Lancet Oncology

Sustaining innovation and improvement in the treatment of childhood cancer : lessons from high-income countries

K. Pritchard-Jones et al. - Lancet Oncology

Paediatric cancer in low-income and middle-income countries

I. Magrath et al. - Lancet Oncology

A paediatric priority

G. Vassal - Public Service Review European Union , Issue 24

A new era in paediatric oncology?

S. Rana - EJC

Międzynarodowe spotkanie onkologów dziecięcych (Gdańsk International Paediatric Liver Tumours Consensus Meeting in Conjunction with Annual SIOPEL Spring Meeting and ENCCA WP12 Group Meeting)

M. Murawski - Gazeta AMG , nr 6/2012, 12-13

Regulate to medicate

R. Ladenstein, P. Kearns - Public Service Review European Union , Issue 23

Trial, treat, triumph

R. Ladenstein, D. Walker, G. Vassal - Public Service Review European Union , Issue 22

EP Workshop on Rare Cancers : The Added Value of Closer Cooperation

Raising standards of care for our young patients

R. Ladenstein - Cancer World , CoverStory

The state of research into children with cancer across Europe : new policies for a new decade

K. Pritchard Jones et al. - eCancer , Volume 5, Art. 210

Childhood Cancer Awareness Day : SIOPE addresses burning issues at EU Parliament on February 9 and promotes FP7-funded project ENCCA

R. Ladenstein - The Parliament Magazine , Issue 321

EU Profile: Fighting childhood cancer at EU level

R. Ladenstein - Public Service Review European Union , Issue 21

Meeting Report of the 1st SIOP Europe Course in Paediatric Oncology: Maasmechelen, Belgium, April 6–9, 2022 – The Participants’ View and Experience

European Journal of Cancer

QUARTET: A SIOP Europe Project for Quality and Excellence in Radiotherapy and Imaging for Children and Adolescents with Cancer

European Journal of Cancer

The Critical Role of Academic Clinical Trials in Pediatric Cancer Drug Approvals: Design, Conduct, and Fit for Purpose Data for Positive Regulatory Decisions

Journal of Clinical Oncology

The impact of the EU General Data Protection Regulation on childhood cancer research in Europe

Lancet Oncology , VOLUME 23, ISSUE 8, P974-975, AUGUST 01, 2022

ESTRO ACROP and SIOPE recommendations for myeloablative total body irradiation in children

Radiotherapy and Oncology

Imaging response assessment for CNS germ cell tumours: consensus recommendations from the European Society for Paediatric Oncology Brain Tumour Group and North American Children's Oncology Group

Lancet Oncology , VOLUME 23, ISSUE 5, E218-E228, MAY 01, 2022

Development of a questionnaire to evaluate female fertility care in pediatric oncology, a TREL initiative

BMC Cancer , BMC Cancer volume 22, Article number: 450 (2022)

Market access to new anticancer medicines for children and adolescents with cancer in Europe

EJC

Characteristics of Early Phase Clinical Trials for Rare Cancers: Insights From Interviews With Stakeholders

M Dooms, R Saesen, I Steemans, J Lansens, I Huys - Frontiers

The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer

European Journal of Cancer , Volume 162, February 2022, Pages 34-44

SIOP Europe Strategic Plan Update (2021-2026)

European clinical trials in paediatric radiation oncology

The Lancet Oncology

Bone sarcomas ESMO-PaedCan-EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up

Annals of Oncology

The potential role of MR-guided adaptive radiotherapy in pediatric oncology: Results from a SIOPE-COG survey

Clinical and Translational Radiation Oncology , VOLUME 29, P71-78, JULY 01, 2021

Adolescents and young adults (AYA) with cancer: a position paper from the AYA Working Group of the European Society for Medical Oncology (ESMO) and the European Society for Paediatric Oncology (SIOPE)

ESMO open

Inter-clinician delineation variation for a new highly-conformal flank target volume in children with renal tumors: A SIOP-Renal Tumor Study Group international multicenter exercise

Clinical and Translational Radiation Oncology

The spleen as an organ at risk in paediatric radiotherapy: A SIOP-Europe Radiation Oncology Working Group report

EJC

The RACE to accelerate drug development for children with cancer

Lancet Oncology

ESGO–SIOPE guidelines for the management of adolescents and young adults with non-epithelial ovarian cancers

Lancet Oncology

A rapid review of evidence and recommendations from the SIOPE Radiation Oncology working group to help mitigate for reduced paediatric radiotherapy capacity during the COVID-19 pandemic or other crise

Radiotherapy and Oncology

ESGO-SIOPE Guidelines for Non-Epithelial Ovarian Cancers in Adolescents and Young Adults

Pediatric cancer research: Surviving COVID‐19

Pediatric Blood and Cancer

Rituximab for High-Risk, Mature B-Cell Non-Hodgkin’s Lymphoma in Children

The New England Journal of Medicine

Organ at risk delineation for radiation therapy clinical trials: Global Harmonization Group consensus guidelines

Radiotherapy and Oncology

The COVID‐19 pandemic: A rapid global response for children with cancer from SIOP, COG, SIOP‐E, SIOP‐PODC, IPSO, PROS, CCI, and St Jude Global

Pediatric Blood and Cancer

ITCC Clinical Trials during the COVID-19 pandemic document

Rationale of the rare cancer list: a consensus paper from the Joint Action on Rare Cancers (JARC) of the European Union (EU)

ESMO open

A European paediatric cancer mission: aspiration or reality?

Lancet Oncology

Caring for children in Europe with very rare tumours

SciTech Europa

4 ways cancer is changing how we test medicines

POLITICO

ERN PaedCan facilitates effective cross-border healthcare

Government Gazette

Improving the care of children in Europe with rare cancer

Open Access Government

The 'Survivorship Passport' for childhood cancer survivors

European Journal of Cancer , Volume 102, 69-81

Collaboration is key in tackling childhood cancer

The Parliament Magazine

The role of collaboration in tackling paediatric cancer

Open Access Government

Childhood Cancer Benefiting from the best knowledge available in Europe

The Parliament Magazine

Survey on paediatric tumour boards in Europe current situation and results from the ExPo-r-Net project

Clinical and Translational Oncology (Springer)

The provision of effective cross-border healthcare

Open Access Government

Identifying critical steps towards improved access to innovation in cancer care a European CanCer Organisation position paper

Matti Aapro at al. - European Journal of Cancer , Volume 82, Pages 193-202

The care of adolescents and young adults with cancer results of the ESMO/SIOPE survey

Cancer Horizons (BMJ Journals)

Orphan Drug Regulation A missed opportunity for children and adolescents with cancer

European Journal of Cancer

From class waivers to precision medicine in paediatric oncology

The Lancet Oncology

International incidence of childhood cancer, 2001-10 a population-based registry study

Steliarova-Foucher E et al. - The Lancet Oncology

The Importance of Pediatric Drug Development A Conversation with Pr. Gilles Vassal, Dr. Gregory Reaman, and Mr. Raymond Rodriguez-Torres

Friends of Cancer Research

ECCO Essential Requirements for Quality Cancer Care Soft Tissue Sarcoma in Adults and Bone Sarcoma. A critical review

Critical Reviews in Oncology/Hematology , Volume 110, Pages 94-105

Tumors in Adolescents and Young Adults

D. P. Stark, G. Vassal - Karger Ed.

Implementation of mechanism of action biology-driven early drug development for children with cancer

Pearson et al. - European Journal of Cancer , Volume 62, Pages 124-131

The SIOPE Strategic Plan A European Cancer Plan for Children and Adolescents

G. Vassal, M. Schrappe, K. Pritchard-Jones, R. Ladenstein et al. - Journal of Cancer Policy , Volume 8, Pages 17-32

Creating a unique, multi-stakeholder Paediatric Oncology Platform to improve drug development for children and adolescents with cancer

G. Vassal et al. - European Journal of Cancer , Volume 51, Issue 2, Pages 218-224

Challenges for Children and Adolescents With Cancer in Europe The SIOP-Europe Agenda

G. Vassal et al. - Pediatric Blood and Cancer , Volume 61, Issue 9, Pages 1551-1557

Towards reducing inequalities European Standards of Care for Children with Cancer

J. Kowalczyk et al. - European Journal of Cancer , Volume 50, Issue 3, Pages 481-485

Collaboration between doctors and nurses in children's cancer care insights from a European project

P. Di Giulio, F. Gibson et al. - European Journal Oncology Nursing , Volume 17, Issue 6, Pages 745-749