Share the official video for the 9th edition of Rare Disease Day on 29 February

Every year, EURORDIS marks the important date of  international Rare Disease Day. The 2016 awareness campaign aims to demonstrate the importance of the Patient Voice as people living with a rare disease and their families are working to bring about change needed to improve their lives. This video allows us all to share a special moment between Elisa, who is living with Williams syndrome, and her parents. Everybody experiences special moments with relatives, children, friends and colleagues. For people living with or affected by a rare disease, the emotion during these moments can be very strong as they leave behind the challenges they face on a daily basis. This video is currently in 18 languages: العربية, hrvatski, čeština, dansk, nederlands, English, suomalainen, français, deutsch, indonesia, italiano, македонски, português, român, српски, español, Türk, Український The momentum to improve the lives of people living with a rare disease is truly global and growing! More information: