About the Project
The European Youth Cancer Network (YARN) weaves together & builds on the EU-CAYAS-NET and OACCUs projects to expand the EU Network of Young People Affected by Cancer, focusing on peer support, social networking, and digital tools to improve access to information, particularly for those facing relapse, metastatic cancer, and treatment side effects.
Project Goal
The project will assess the role of social connections on the emotional well-being of young people with cancer.
A Youth Cancer Council will empower young people with cancer experience in leadership and will ensure lived experience shapes outcomes and drives long-term policy impact.
The project will also promote equity, diversity and inclusivity (EDI) in healthcare institutions and patient communities. A focus on healthy lifestyles will introduce exercise programs, workshops, and a bootcamp to improve well-being.
For more information, please check out the official websites of the project:
https://beatcancer.eu/ and Social Media (Instagram - @youthcancernetwork, Facebook - @YouthCancerNetwork, Linkedin - @YouthCancerNetwork; X - @youthcancereu)
SIOP Europe's Role in the Project
The European Society for Paediatric Oncology (SIOP Europe) will be task leader in the WP2 dedicated to “Quality of Life, Mental Health & Psychosocial Care, Education & Career Support”, while also being mainly involved in the WP2, and WP3.
The tasks in which SIOPE will be involved in WP2 are:
T2.1 Dissemination and Implementation of the “Joint Standard of Psychosocial and Mental Health Care for Children and Adolescents with Cancer in Europe” | SIOPE| MUV
T2.2 Addressing High-Demand Mental Health & Psychosocial Care Topics| CCI-E | SIOPE
T2.3 Developing and Expanding Education and Career Support Programmes for Young People with Cancer | MUV | CCI-E
T2.4 National Implementation and Evaluation of the Train-the-Trainer Education and Career Support Programme | MUV | CCI-E
The Work Packages included in this project are listed below:
- WP1: Network Management
- WP2: Quality of Life, Mental Health & Psychosocial Care,Education & Career Support
- WP3: Improving Long-Term Follow-Up and Transition of Care for Young People Living with and Beyond Cancer: Tools, Materials, and Guidelines
- WP4: Care for Adolescents and Young Adults (AYA) with Cancer, Including Focus on Side Effects, Relapse, and Metastatic Cancer
- WP5: Equity, Diversity, and Inclusion (EDI) in Cancer Care
- WP6: Healthy Lifestyles
- WP7: Communication, Dissemination, Education, and Events
- WP8: Digital YARN Platform
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