Four years of GDPR implementation in European childhood cancer research:
Taking stock of the impact, re-defining the needs
in the framework of EU flagship childhood cancer initiatives
Wednesday 2 February 2022 (12:00–14:00 CET)
Hosted by MEP Loucas Fourlas (EPP, Cyprus)
SIOP Europe once more marked International Childhood Cancer Awareness Day (ICCD, 15 February each year) through a policy event that was be hosted by leading childhood cancer supporter MEP Loucas Fourlas on 2 February 12:00 – 14:00 CET in an online format.
This year’s event was dedicated to the impact of the General Data Protection Regulation (GDPR) in childhood cancer research
The rarity of individual paediatric cancer types and their leading collective health burden across Europe make coordinated EU level approaches crucial. The annual ICCD EU policy event is thus dedicated to finding novel solutions to foster progress in childhood cancers through EU policy, programmes and collaboration with all stakeholders.
The GDPR has been a key milestone in childhood cancer due to the importance of cross-border health research data sharing in this rare disease field. Four years after the implementation of the GDPR, ICCD 2022 will focus on its implications for childhood cancer professionals and parents, patients, and survivors and engage key stakeholders to elucidate the current framework and ways to achieve further progress.
Background Event documentation
- The impact of the EU General Data Protection Regulation on childhood cancer research in Europe
- News Release: On International Childhood Cancer Day, health data sharing takes centre stage
- SPEAKER PROFILES
- The Impact of the GDPR on Childhood Cancer Research – Key Survey Findings - presentation by Gilles VASSAL
- GDPR and medical research - presentation by Owe Langfeldt