PARTNER (ERN-PAEDCAN Partner: Paediatric Rare Tumours Network – PARTNER) is a three-year Health Programme funded project running from January 2018 to December 2020.

The project is a collaboration between six associated partners from Italy, Austria, Germany, France and Poland and 21 collaborating stakeholders from around the world.


PARTNER focuses on the creation of a Paediatric Rare Tumour European Registry dedicated to children and adolescents with VRT (Very Rare Tumours) linking the existing national registries and providing a registry for those countries not already having a registry for VRT in place.

PARTNER members:

  • Azienda Ospedaliera di Padova, Lead Partner (Italy)
  • Anna Kinderkrebsforschung (Austria)
  • Klinikum Dortmund gGmbH (Germany)
  • Eberhard Karls Universitaet Tuebingen (Germany)
  • Institut Curie (France)
  • Gdanski Uniwesytet Medyczny (Poland)


Brussels Project Meeting: 17 October 2019

On October, a project meeting was held in Brussels at the Renaissance Hotel. The purpose of the WP3 Evaluation meeting with WP Leaders was to discuss work packages progress and the possible activities for year 2 of the project implementation. Participants were engaged in interactive discussions about their activities and priorities.

The 5th PARTNER Consortium Meeting and EKUT Round Table discussion is scheduled for:

12 February 2020, Brussels, Belgium

Contact for further information:  Serena Mancini:


Creation of a dedicated Working Group for EXPeRT/PARTNER website

To stimulate communication, the PARTNER project has been integrated in the existing EXPeRT website, to ensure continuity with the European activities already carried out in this area.

The website has been online since mid-February 2018 and a dedicated working group has now been set up to revamp the Expert website (European Cooperative Study Group for Pediatric Rare Tumors), including the PARTNER Project web pages.

The objective is to update the design and structure of the EXPeRT/PARTNER website thereby improving the presentation of the content so that web visitors can navigate easily to the desired pages and reach relevant/useful/up-to-date information.

The SIOPE team is liaising between the IT service provider and the EXPeRT/PARTNER Website Working Group to revamp the ‘look and feel’ of the existing website.

The current website has been developed in WordPress and is integrated in the current SIOPE website infrastructure.  SIOPE has submitted a proposal to revamp the ‘look & feel’ of the homepage and all amendments and changes are planned to be completed soon.



SIOP Europe is the dissemination partner for the PARTNER project. More information available on the project website and on social media using hashtag #PARTNERproject.


This Newsletter is part of the project / joint action ‘777336 / PARTNER’, which has received funding from the European Union’s Health Programme (2014-2020).

Its content represents the views of the author only and is its sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.