Two twinned projects currently concentrate the efforts of our Policy team. These projects are being worked on in parallel because they both address inequalities across Europe. They are the Organisation of Care & rEsearch for children with cANcer in Europe project (OCEAN) and the National Cancer Control Plans Project (NCCP).
Both projects anticipate having manuscripts published within the next few months.
NCCP: Aims and objectives
The goal of the project is primarily to map, analyse, and provide an overview of the childhood cancer content of NCCPs (National Cancer Control Plans) of all EU Member States, the UK, and other countries across Europe as of 2022. In addition its goal is also to advocate that each NCCP should have a comprehensive childhood cancer programme at the time when Europe’s Beating Cancer Plan dedicates a distinct section to this population.
The NCCP project objectives are as follows:
- To retrieve NCCP documents of all countries
- To apply a pre-defined methodology for extracting childhood cancers’ content from NCCPs
- To summarise the childhood cancers’ content of each NCCP
- To rank the level of comprehensiveness of each NCCP regarding its childhood cancers’ content
- To quantify the number of NCCPs in relation to their childhood cancers’ content according to pre-defined criteria
- To summarise the state of childhood cancers’ inclusion in NCCPs across Europe in a peer-reviewed journal publication
OCEAN: Aims and objectives
The goal of the project is to map the organisation of care and research in Europe and provide an overview of the paediatric cancer centres that deliver care and research for children and adolescents with cancer across Europe at the time the EU is building a network of comprehensive cancer centres for adults with cancer. European Cancer Inequalities Registry (ECIR) quality criteria will be considered for data acceptance.
OCEAN’s project objectives are defined around two working packages:
- Describe the Organisation of care for children and adolescents with cancer in countries affiliated with SIOPE and CCI Europe, EU and non-EU
- Describe the Organisation of clinical, translational and basic research for children and adolescents with cancer across Europe
Participating countries
38 countries (EU and non-EU) covering the SIOP Europe and CCI Europe member countries (except Ukraine, Russia and Georgia) participate to the OCEAN Project.