About the Project
PanCare4AYA is a 5-year EU-funded project (Horizon Europe) that kicked-off on 1 April 2025. It aims to improve the long-term health and quality of life of adolescents and young adults (AYA) diagnosed with cancer. Despite improved survival rates, many AYA cancer survivors face unmet needs in follow-up care. PanCare4AYA will develop, implement, and evaluate an international clinical guideline and a screening programme to make Survivorship Care accessible and effective across Europe.
The project brings together 29 partners from 14 countries. It builds on the results of the PanCareFollowUp project and the guidelines from the International Guideline Harmonization Group and the PanCare network.
Project Objectives
- Develop an international, evidence- and consensus-based guideline for AYA cancer Survivorship Care (screening and follow-up) and develop supportive PLAIN language brochures based on the guideline.
- Develop the person-centred AYA Cancer Survivor Screen programme to apply the AYA cancer Survivorship Care guideline in practice, including a Programme Manual with a Survivorship Care Plan (SCP) template (including Treatment Summary), supporting materials for survivors and healthcare professionals (HCPs) to implement the AYA Cancer Survivor Screen programme and an implementation strategy.
- Develop support tools for the AYA Cancer Survivor Screen programme, including AYA survivor peer support networks, AYA-specific versions of existing digital tools for Survivorship and a guide for developing digital tools for Survivorship Care.
- Conduct an implementation study of the person-centred AYA Cancer Survivor Screen programme in 11 European countries with 1,000 AYA cancer survivors, to assess the impact of the programme on:
-Empowerment, mental, psychosocial, QoL outcomes
-Healthcare delivery and screening-related health
-Experiences of AYA cancer survivors and HCPs with implementing the state-of-the-art screening programme within a range of different healthcare settings,
-Feasibility, and
-Costs for healthcare systems.
- Contribute to the 'Quality of Life' cluster for the Mission on Cancer and establish links with other (EU) initiatives in AYA cancer Survivorship Care to avoid duplication of effort and maximise synergies.
- Develop a Replication Toolkit for the AYA Cancer Survivor Screen programme to support scale-up of the AYA Cancer Survivor Screen programme across Europe.
- Communicate and disseminate the importance of screening in AYA cancer Survivorship Care and the project results to key stakeholders to promote scale-up of the AYA Cancer Survivor Screen programme and improve AYA cancer Survivorship Care across Europe.
SIOPE’s Role in the Project
SIOPE is a key partner in PanCare4AYA, supporting activities on communication, dissemination, and stakeholder engagement. Our role includes:
- Sharing project progress and results with the wider SIOPE oncology and survivorship community.
- Supporting the dissemination of guidelines and tools to healthcare professionals, policymakers, and patient organisations.
- Strengthening connections between paediatric and AYA oncology networks to promote the project’s implementation and sustainability.
